19
Jan
09

January 19 – Swinging

swings

Here’s what I love about this picture. My almost 14 year-old is a kind, nurturing, thoughtful, person. As he hits those teen age years, we don’t always get to see that side of him.

We aren’t fighting with him over the hair. Life’s too short.

_______________

Here’s why I can hardly breathe when I look at this picture.

My nephew, who is 6 and in first grade, has Stargardt’s Disease.

Stargardt’s is a juvenile onset macular degeneration. His vision has already deteriorated and he is learning Braille for when his vision gets worse. There is no cure, well… stem cell research may provide something someday. It is genetic, and my twin nieces have the markers for the disease also, although their vision is o.k. now. They all wear hats and glasses because they tend to be very light sensitive.  (And they never complain!) Every year, they drive to UCLA to see a specialist. Their mom is a special education teacher, who is getting her vision/mobility MA. Dad stays home with the kids.

My boys do not have the markers for the disease.

Advertisements

0 Responses to “January 19 – Swinging”



  1. Leave a Comment

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s


web stats

You can find me here:

Singapore Math

and here:
Flickr

and sometimes even here:
Tweet

Personal Commandments

See the big picture. (and get a shot of it!) Step up. Give back. Do something different. Make a lot of mistakes, but never the same ones twice. Be ridiculously happy. Action, not reaction. learn, laugh, love.

Haba na haba, hujaza kibaba.

Be the Change!



Creative Commons License


January 2009
M T W T F S S
    Feb »
 1234
567891011
12131415161718
19202122232425
262728293031